I was looking at some pictures on my phone and thought I would put some in a blog. These are pretty much just some pictures I have snapped over the past few weeks. Andrew is a good baby for the most part. He only wakes up once during the night to eat. Usually around 3:30 or so. Then he gets up around 7:00ish to eat again, but we get up at 6:00 to go to work, so it's no biggie. His fussy time is at night. For some reason every night around 7:00-10:00 he is fussy.
We have his first surgery scheduled for January 17th in Chicago. This will be to put his first set of tissue expander's (TE) in. We will probably be in Chicago for about 2 weeks and then we will come home. He will wear these TE for 12 weeks, with us filling them each week. Of course this is assuming he doesn't have any complications during this time and we have to go have them taken out. From what I see in the support group that I am in is that there is hardly ever a round where there are no complications/problems. We just hope that we can work though whatever comes up and we don't have to have the TE removed. Wish us luck! Also, his next surgery is already scheduled for April 8th to take the TE out and begin removing the nevus. That is where we are right now with the surgeries.
He will have his MRI in November sometime. That will put him at 4 mths old and they want you to be between 3-6 mths old. They will have to put him to sleep for this and it will probably take about 1.5 hrs to do all the scanning they have to do. It takes 45 min just to scan the brain. Then they have to scan the spine, bump on his nose and fatty spot on his back.
Some of you have asked about having his finger and toes surgery, the doctor wants to wait until he is around a year old. I am not sure when we will be able to "squeeze" that one in. We will just have to play it by ear and see how the TE is going. I hate to put him through another (BIG) surgery during his 4 mths off from TE, but I also don't want him to be 4-5 years old and still have his fingers and toes stuck together. They like to do the surgery while they are young before they start using their hands a lot. Luke's surgery was done at 3 mths old, but I am NOT doing Andrews that young. That was too young in my opinion looking back. SO, check back on the finger/toe surgery.
Speaking of Luke, he is going to have another surgery on his finger that doesn't bend. We are going to do a tendon graph and see if we can help him bend it. It is a "good" finger, but doesn't have the tendon needed to bend it. We have been to the doctor and we are good to go whenever we want to. Jud and I think we will try and do his surgery over x-mas. We want to get it done before he starts K, but he is in pre K right now and has already had a cast on for 5 weeks. The surgery will be on his right hand, so it will be cast back up for who knows how long. If we can do the surgery over x-mas break, maybe that will help some with pre K. Plus, I don't want him to have a cast on during the summer b/c he can't swim or anything.
I hope that I have updated you all. That is all I can think of at this time. It is easier to write a long blog than to have to repeat it 100 times. HA! Keep us in your prayers!
One of my new favorite verses:
In every thing give thanks: for this is the will of God in Christ Jesus concerning you.
Taken after Andrews first Sunday AM at church
Luke's first time to hold Andrew in the hospital
Just hanging out in our bed one AM
My first time to hold Andrew
Daddy and Andrew in the hospital
Just getting fatter and fatter! LOL!
Brotherly love!
Bear hug! :)
After a bath
Thinking "yeah I'm that cute!"
War Eagle! Andrew and AU have been doing the same thing during the games this yr! (sleeping!)
Lauren on a stroll with Andrew
5 comments:
Praying for Andrew, and for you (to have peace about all of this).
Your boys are beautiful.
Thanks for updating all this Jules - it sounds like you are going to have a lot going on for awhile. Been thinking about you and praying for you all. Andrew continues to be on our prayer list, and we will add his surgeries and MRI to the list.
I hope you know that even though we don't see you guys as much, we don't stop thinking about you all.
If there is anything I can do the next few months to help, please ask. I know you don't ask - but Luke is loved so much by us, that we'd be so happy to have him if you needed help.
Andrew is beautiful, Luke is beautiful and I really like your verse, as hard as it is.
Julie, I am so glad that you posted. Chad and I have been thinking and praying for you guys. You have absolutely precious children. We are only about 2.5 hours south of Chicago. I know that's not super close but I could be there to help if you need it. Are you driving up there? If so, we are literally five minutes off the interstate. You are welcome to stop and take a break if you need it. We love you all!
Julie and Jud,
Thanks for the update! I will be praying for all of you and for the surgeries of Luke and Andrew. I pray that you will both have peace during all of this. Andrew is just adorable! I can't believe that Luke is in pre-K! The time flies....
Praying for you guys and the upcoming surgeries for sweet baby Andrew! He is a beautiful baby boy. I think he favors his brother a lot. I know Luke is probably a great helper. Won't be long before they are wrestling and chasing each other around. They grow too fast. I can't believe we have Pre-k kids already!
Y'all are such good parents and just know we will continue to pray that the procedures go well and that he will have fast healing and successful surgeries! Love y'all!
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